At five-and-a-half years old Katelyn, or "Katie" as her family calls her, was formally diagnosed with "Rett Syndrome." Katie, now age 11, can barely lift her arms. She can't walk. She can't even eat but gets liquid nourishment through a feeding tube in her stomach. She can't speak. "It's a horrible diagnosis because ther's no cure," says Mary Ann, Katie's mother. "..One day you have all skills and one day you don't."